Kate had a successful functional MRI today. The biggest problem, she said, was not falling asleep during the long boring stretches. The new contact lenses worked well enough, and she managed to get them in and out before and after the test. She may not ever use them again, but they did the job.
She brought wooden knitting needles and a ball of yarn, but didn’t get to use them.
We don’t have “results” from this test, nor did we expect to. I believe the purpose of the test is to map out the parts of her brain that Kate is actually using, so as to properly avoid them during the surgery. There will be an additional MRI, called a “stealth” MRI, during the surgery itself — the neurologist described this as “a GPS for the brain.”
Kate’s language and cognitive skills are generally better than when we went to the ER, thanks to the steroids I think, though she does definitely still have some interesting issues, such as coming out with exactly the opposite word from what she meant. “It would be fascinating if it weren’t happening to me,” she says.
We have had much love and assistance from many friends, especially Bo (coordination), Ariel (laundry and beef stew), and Sara (more than enough delicious food for four meals for the three of us, left in a cold-bag on our porch while we were at the MRI), and double-especially Sue, as well as many good wishes from farther afield. We’ve also received one anonymous gift, a knitting-themed tote bag via Cafe Press, for which thanks. I may not be able to keep up with the individual thanks as things get hairier, but please know that you are all appreciated more than you could ever know.
In some ways this experience, terrible though it is, is kind of… cleansing. All my priorities have been reduced to two: 1) This has to be done NOW; 2) Fuck it. I have, with great reluctance in some cases, canceled or postponed almost everything we had been planning to do through January. With luck that will be sufficient.
I cannot imagine doing this without cell phones, text messages, and mobile email. I took three phone calls and uncounted text messages during a one-hour consultation with the nutritionist.
At one point, while waiting for some doctor, I began whistling the Jeopardy theme. Right at the end, where the last low “dum DUM” comes in the song, my phone sounded an incoming text message. We laughed and laughed.
We are still laughing.
We expect to attend Thanksgiving dinner with our fannish friends. Everyone have a good Thanksgiving, and hug your loved ones.